Healthcare data can be obtained from facilities providing care, such as hospitals, emergency departments, and ambulatory surgery centers. Data from facilities generally includes billing data, electronic medical records, or survey data at the visit level for the specific-setting of care. In some data systems, the data can be aggregated to an individual patient. Examples of data include Healthcare Cost and Utilization Project (HCUP), National Surgical Quality Improvement Program (NSQIP), biomedical informatics, and national healthcare surveys from the National Center for Health Statistics.
The HCUP databases bring together the data collection efforts of state data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of patient-level health care data. HCUP includes the largest collection of longitudinal hospital discharge, emergency department visit and ambulatory surgery visit data in the United States, with all-payer, encounter-level information beginning in 1988.
NCHS National Health Care Surveys collect data at the level of the provider, such as a physician office, a hospital inpatient department, or a nursing home. The health care provider gives information about the patients who receive services and the types of care that are delivered. Depending on the setting in which the care is delivered, this information may come from a record of the patient’s most recent visit, the hospital discharge form, or review of the entire medical record. Estimates from these databases are designed to be nationally representative.
ACS NSQIP collects data on 136 variables, including preoperative risk factors, intra-operative variables, and 30-day postoperative mortality and morbidity outcomes for patients undergoing major surgical procedures in both the inpatient and outpatient setting. For more information, contact CADR staff.
Clinical Investigation Data Exploration Repository (CIDER) / Biomedical Informatics at BJC HealthCare
CIDER is an inpatient and outpatient research patient data warehouse based on electronic medical information at select BJC hospitals.